June 26, 2024

From Shadows to Spotlight: The Journey From Pain To Empowerment (AUDIO ONLY)

From Shadows to Spotlight: The Journey From Pain To Empowerment (AUDIO ONLY)
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From Shadows to Spotlight: The Journey From Pain To Empowerment (AUDIO ONLY)

Surviving Shingles: Amanda McCombs' Journey from Pain to Empowerment

In this heartfelt episode, Amanda McCombs, host of the 'Not So Genius' podcast, shares her profound journey of overcoming shingles, a debilitating condition that dramatically impacted her life. Amanda recounts her struggles with misdiagnosis, severe pain, and the intense isolation that followed. Despite the setbacks, she found resilience and support through her family and community. Her story illustrates the transformation she underwent, from being incapacitated to participating confidently in a beauty pageant. Amanda's narrative is a powerful testament to human strength and the embrace of life's small joys.

00:00 Welcome to the Not So Genius Mind

00:41 Amanda's Personal Journey

01:33 The Shingles Diagnosis

02:36 Living with Shingles

06:47 Finding Joy Amidst Pain

08:50 Reflections and Resilience

12:13 The Beauty Pageant Transformation

13:41 Conclusion and Next Steps

#NewPodcast #RealTalk #PersonalJourney #Resilience #Healing #Empowerment #PodcastEpisode #LifeStories #OvercomingChallenges #TuneInNow

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Hi, welcome to the inner workings
of the not so genius mind.

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Diving deep into the ordinary mind
to uncover extraordinary insights.

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I'm your host, Amanda McCombs.

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Our goal is to bring light to the shadows.

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Laughter to the tears and a sense of
community to all those who tune in.

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Please share, like, and subscribe
through your preferred podcast platform.

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You can find me at not
so genius on Instagram.

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You probably have no idea who I am,
but hang out for a while and you're

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going to get a very good look.

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at what has happened along
the way to make me who I am.

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The love that grew from the ashes and the
resilience it can take to be alive today.

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I am Mrs.

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Daybreak from the Mrs.

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Utah America program.

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I went from hardly being able to walk
straight to dancing in six inch heels

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on a stage and I've like really had no
idea where to start with this story.

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I mean, how can I even begin to untangle?

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What brought me to where I am now.

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There is a lot of heartbreak and
a lot of trauma and resilience and

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compassion and somehow I still made it.

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I made it through.

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Let's go back to like
a year and a half ago.

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in February when I was diagnosed
with shingles through my sinuses

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and it was in my ear and all
over the right side of my face.

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Like it was all up in here.

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Did you know that could happen?

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Did you know it can go inside your face?

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Did you know it can go in your head?

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It was in my eyelid.

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Um, and I'm young ish, right?

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I'm not very I'm in my 30s,
late 30s, approaching 40.

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I'm not in my 60s, like they say.

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People normally get it.

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And now I'm hearing all the time,
like after I got it really bad.

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I hear from people all the time
around my age that are getting it.

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And, um, I was really fit.

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I was in the best shape of my life.

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I was teaching Arts Integrated P.

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E.

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Which

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my I loved it like a lot.

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That was one of my favorite things
I did actually but um, I Once the

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shingles went through I I couldn't
see or hear I was totally down

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So I got some articles for you help flying
says that shingles is a rash that usually

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appears on one side of the chest and back.

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It can also develop on the side
of the face and around the eye.

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The condition can be very painful and can
sometimes have long term side effects.

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No cure for shingles is available,
but early treatment can lower your

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risk of serious Complications.

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And it's more likely to happen if
you have a compromised immune system.

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You can get it at any age, but
your risk increases after 60 and

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it's no there there's we don't
know why people get it on the face.

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And one out of three adults get it.

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I didn't, I had no idea what it was.

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I initially, when I went in,
I was misdiagnosed with an ear

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infection and they gave me some
eardrops and I tried that out and

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laid down and it was not working.

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My head hurt so bad.

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They were trying to tell me that I had
swimmer's ear and I was like, Nope.

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Nope.

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Nope.

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Nope.

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Nope.

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Um, and because it had been long
enough, there is an antiviral you

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can take that reduces the symptoms
and like makes it not last as long.

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I didn't get it in time.

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It has to be given within three
days to keep someone from having

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any long term or permanent damage.

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And to this day, like all this part of my
face, my eye, and like all down my nose,

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and all along here, and even in parts
of the back of my head, I can't feel.

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And I have, like, I looked it up.

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It's

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Posterpic Neuralgia.

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P H N.

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I'm totally saying that wrong.

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Um, it's damage to the nerves that
can cause tingling, burning, pain,

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and other symptoms for months
or years after the infection.

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And some people have constant
pain, while other people have it,

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like, come and go over the years.

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And that is what's happening.

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In my face, behind my
eyeball, and in my sinuses.

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And I'm still dealing with it.

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I'm probably, like, any time I
ask any doctor about symptoms

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and how long it takes, they're
like, oh, every case is different.

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We have no idea.

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So.

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Also, when I had shingles, it's
not like I could put, like, all

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the creams that you can do on.

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Your face.

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It was real.

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It was awful.

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You guys, it was so hard to deal with.

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I couldn't even hear the sound of my
own breathing without crying in pain.

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So like I have kids, I have animals, I
have my husband, I'm supposed to teach.

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I love music.

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No voices, no music, nothing.

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Part of the time I had to have like,

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My eyes covered, and earplugs, and an ice
pack, and blinds drawn, and like, nothing.

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No light and no sound.

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Nothing.

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Um, forget going outside.

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It was February.

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The sun reflecting off
of the snow was awful.

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I needed noise canceling headphones.

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I needed Sunglasses.

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Like, if I had to ride somewhere in the
car, my husband was so sweet, he went and

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got me a sleep mask so that I could put
it on while we were driving in the car.

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And like, eye patches.

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Anything that I could do
to like, Figure it out.

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It was awful.

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And once summer came, like the,
I live by, I live in Daybreak

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because I miss this daybreak.

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And there's a beautiful lake.

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And I just have found a
love for paddle boarding.

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And there was no way I could go out there
with the light reflecting on the water.

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It was awful.

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And people would be like,
Oh, you don't feel good.

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You should read this book.

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Or you should watch this movie.

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Or you should do this.

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Or you should do I literally
couldn't do anything.

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I couldn't watch movies.

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I couldn't read books.

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I couldn't listen to books.

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I'm a teacher.

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They tried to, my husband tried to take
me to a restaurant for my birthday and,

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um, I snacked on a fruit tart inside
because the restaurant was too loud.

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That's what I did for my birthday treat.

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It was too loud.

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And I still wanted to go back to work.

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Um, the kids, when I was teaching
PE, they would just call me coach.

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And some, some of them still do.

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I teach first grade now, but, um, I came
back as the visual art teacher that had

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to wear a hat inside and sunglasses.

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Um, but somehow I was able
to find life in the madness.

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And when I lost my balance, I was able
to find others that could catch me.

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Like literally, my husband would hold
my hand and guide me through it all.

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He picked up so much slack and I
knew he was just as scared as I was.

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I knew he hated seeing me go through
this and he just felt so totally

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helpless, but he took care of everything.

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Um, and he took care of
me the best that he could.

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He drove the kids to all their lessons.

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He drove to school.

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He drove everywhere.

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I couldn't drive.

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Are you kidding me?

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That wasn't going to happen.

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And that was for months,
months and months and months.

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And somehow I was still able to find joy.

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My priorities changed when I couldn't
take in the world around me at my leisure.

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Um, now I can see and hear again and I
am never, never taking that for granted.

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Holy smokes.

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After like a year and a half of
battling awful pain, I can read

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like, I can actually read books.

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Yes.

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And I can see outside.

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I don't always have to wear sunglasses.

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Why is that so exciting?

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I don't know, but it really is.

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Um, I felt the world like had been
taken away from me one piece at a time.

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And now I'm taking it all back in again.

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And I'm taking in like every little
moment and I'm able to like be where

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I'm at and be happy with where I am
and be thankful to even be alive.

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Um, my life is now defined by what it was
like before shingles and after shingles.

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And you guys the world is,
it's such a beautiful place.

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I'm so glad that I'm at a
place I can take it in again.

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I took a lot of my life for granted.

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And I really had a lot of time
to evaluate and process a lot of

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traumas that I had gone through
in my life before I got shingles.

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And unfortunately, at the peak
of my shingles, in February,

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My mother and stepfather's
house burned down and

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I couldn't like, I barely
remember hearing about it.

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Um, I couldn't look at pictures,
forget taking a phone call.

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I couldn't hear.

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Um, but anyway, I wasn't able to
do anything about it for months.

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And there's going to be
more about that later.

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Cause you know, One
traumatic thing at a time.

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I had so much time to think
in all of that silence.

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And I was left alone with
just the thoughts in my head.

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I had to rethink about my life.

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Like, did I do this to myself?

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Is this a punishment?

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Why me?

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Is this a curse?

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Am I even going to make it?

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I didn't even want to be here.

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I didn't want to be going through the
pain that I had in my head and nobody

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could see, nobody could understand.

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I had already been working with a
therapist, but this was like being forced

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to innerly, internally reflect and change.

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So here I am over a year later and I'm
doing my best to live life to the fullest.

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And I'm wanting to live life to find
joy and do things that make me happy.

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Um, I had to start taking care of myself.

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I was walking with a cane, like
literally couldn't walk straight.

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And here's the question.

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How do I go from not being able
to see, hear, or walk straight,

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thanks to shingles, to walking and
dancing in six inch heels on stage?

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Um, who in their right mind would sign up
for A beauty pageant knowing that they're

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a hot mess battling internal demons still
with whatever weapons and tools they have.

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I think the literal words, um, to the
people I signed up with were along the

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lines of, I would need a lot of work to
be in a beauty pageant, but guess what?

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I did it.

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And it was so healing and I
am thankful for all the friends

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I made and the whole experience.

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Um, the pageant gave me some
kind of superpower or something.

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I'm more confident and I can see my value
and like honestly kind of figured out

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what it really means to be empowered.

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Like they talk about empowerment all
the time in beauty pageants, but I

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was surrounded by empowerment and I
finally get it now and I, I'm ready.

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Guys, we are going to do so much talking.

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We're going to talk about all the feels
and we're going to let it all out.

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And some of us might cry.

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Um, apparently I cry a lot.

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Now that's new cause I'm feeling things.

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I wasn't really letting
myself feel before.

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Anyway, if you stuck around,
thank you for coming to the inner

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workings of the not so genius mind.

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Tune in to the next episode and
find out what happens next time.

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I don't know.

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We'll see where this goes.